O sodni bitki za prepoved patentiranja človeških genov

    Tania Simoncelli, znanstvena svetovalka pri American Civil Liberties Union, v izjemno zanimivem TED predavanju Should you be able to patent a human gene? opiše, kako sta se s kolegom pravnikom leta 2005 lotila izpodbijanja pravice do patentiranja človeških genov in po mnogih letih sodnih bitk zmagala na vrhovnem sodišču s soglasno sodbo vseh sodnikov.

    In 2005, Tania Simoncelli, then the Science Advisor for the American Civil Liberties Union, contemplated a question at once simple and complex: Are human genes patentable? At the time, U.S. patent law said they were — which meant patent holders had the right to stop anyone from sequencing, testing, or even looking at a gene they had patented. Troubled by the way this law both harmed patients and created a barrier to biomedical discovery and innovation, Simoncelli partnered with ACLU attorney Chris Hansen to challenge it. In this riveting talk, she tells the story of how they took a case everybody told them they would lose all the way to the Supreme Court — and won.